A Call to Advocacy

August is upon us and before you know it school will be back in session.

Is your child ready? Do you know the services they should receive related to their disability? Are you worried about beginning another year of uncertainty, missed goals, and limited progress?

We can help you navigate those murky waters called “Special Ed.”

Call us today if…

  • You feel your child may have a learning disability
  • You don’t understand the ins and outs of the (IEP), Individualized Education Plan
  • You want to know your rights as a parent
  • Need help writing a letter to the school
  • Don’t understand the evaluations process, percentiles, outcomes etc…
  • Feel your child should be making more progress in academics
  • The school seems to be fluffing you off, saying she/he will catch up

Special Needs NJ has been providing families with “special needs” members for over 15 years in the areas of IEP interpretation, letter writing, IDEA law review, evaluation and assessment interpretation, understanding timelines, everything up to and including meeting attendance with your (CST) Child Study Team. Giving you the skills, techniques, and guidance to help you become the “BEST” advocate you can be for your child.

We understand ALL of the classifying categories; ALL of the related services, and most importantly How you can get the best possible program for your child to progress and become successful in their educational experience.

DON’T WAIT ANOTHER MINUTE….

CALL (973) 534-3402 and we will give you a free consultation.

Statistics show that children who get the proper services during the formative years of Kindergarten-3rd grade perform beyond their expected potential. Unfortunately we see most students because they are struggling and by 3rd grade they are 2-3 years behind, by 5th grade they are 3-5 years behind, and by 8th grade they are moving into high school with only a 5th grade reading level!

However, don’t despair if your child is already in this situation… it’s NEVER too late!

call, email, or fill out the service form right here on our page.

Our prices are conservative and very reasonable

Isn’t your child’s future worth it?

 

SNNJ also provides: Tutoring, Life Skills Coaching, Behavior Management

IEP review time!!

This is such a crucial time of year for all of us “Special Needs” families.

It’s time for the dreaded annual IEP (Independent Educational Plan) review.

Please, Please, Please remember the following very IMPORTANT actions you need to take as you prepare.

  • The IEP and CST (Child Study Team) meeting is yours, NOT theirs!                                              This meeting is taking place because of you, your child, and your family
  • Come prepared                                                                                                                                                Make sure you prepare an agenda of what you want to discuss, see happen, plans and interventions “needed,” etc…                                                                                                            Don’t let them dictate the meetings time frame and events. Yes, you may want to discuss those evaluations and test scores, but it is NOT the only reason you are there. Make sure you have ALL re-eval documents a minimum of 10 days prior to the meeting. Understand what they mean and what are your child’s strength and weakness areas yes, but unless you need clarification…going over stats and percentages should not monopolize the time you have to meet.                                                      If your child is already classified and has been, chances are you are aware and agree that he/she has a disability and is entitled to services. So, get down to business after a short (15 minute) review of the evals.                                                                                                                                                                                                                                            NEVER, deny or refuse triennial re-evaluations!
  • Parental Concerns is IMPERATIVE!!                                                                                                            Every IEP has a “Parental Concerns” section, it’s usually a tiny box only about 1/4″ wide….. This does NOT mean you have to fit all of your concerns here!                              Come with an already prepared, typed statement of your parental concerns (probably what you intend to discuss anyway) and formally REQUEST it be included in the official (LEGAL) document of your child’s IEP. This way it becomes a full part of that IEP and everyone your child works with will have access to your input.
  • Record, Report, Re-state                                                                                                                                 Most schools will send you a confirmation letter stating the time, place, and whom will attend the IEP meeting. It may ask if you intend to bring someone? If you request any other professionals and staff? and whether or not you plan to record the meeting?                                                                                                                                                        YES! You want to record the meeting!                                                                                              No, not to antagonize or catch them….. but to have a record for your own to review or for the review of others that may have been unable to attend (That parent out there earning the paycheck who can’t afford another day off the job).                                    You are emotionally involved. Therefore you may not remember or even understand what is being stated/proposed and you need to review the meeting later when you are in a calmer state.                                                                                                                                 The recording will also serve as a resource you can refer to in order to clarify the items discussed for your follow up summary.
  • Follow up summary                                                                                                                                           YES! ALWAYS follow up EVERY meeting, phone call, discussion, teacher email, notes and ANY contact you have with the professionals that service your child with a follow up summary….   “My understanding of what was discussed, proposed, implemented etc….”
  • Finally, and probably MOST IMPORTANT!!!                                                                                              Send ALL correspondence to no less than 3 people in your district ie. the case manager, head of special services, and the building principal. This will ensure you are heard! As well as provide a time stamped/documented record (always send via email) of your insights and perceptions. It also helps that others on your child’s case are aware that they are accountable to replying and taking actions by others within the system.                                                                                                                                                     A recent statement from a client…..”thank you- I did the “copy 3 people on email thing” the last 2 times- whew boy does that work! THANK YOU! “
  • Get support!                                                                                                                                                         If you feel you need some support or expert advice, contact us here at Special Needs NJ  (973-534-3402) to talk to an Advocate/Special Education Consultant

PATHWAYS for EXCEPTIONAL CHILDREN

 
pathways
Empowering Children of ALL Abilities
Project Win Win Employment Training
Pathways began an innovative employment training program for children ages 12 and above in May 2008. Since then, the program has grown tremendously. It is housed in our studio facility in Boonton, NJ. 
Richard Constable, Commissioner of the New Jersey Department of Community Affairs visited the program in November 2014 and was amazed at the array of programs and how the children trained alongside their peers for workforce placement. The program does three things a) Trains children for careers they are passionate about, b) Works to place children in job settings, and c) Teaches about the possibility of starting an entrepreneurship. Today the world is filled with opportuntity and the work force is changing constantly in a way that helps those with disabilities. Learn how you can begin to train early to get the skills needed to be successful in a dynamic workforce!
The Harlem Wizards Are Back!
Join us for a great afternoon of fun, basketball hoops, and entertainment. The Wizards are coming Sunday – February 15, 2015 at 2:00pm at the Montville Township High School large gym. The Montville SuperStars made up of parents, teachers and Pathways’ basketball players are taking on the Harlem Wizards. All of our $30.00 Courtside tickets are sold out. We still have the $15.00 general admission tickets. Last year we completely sold out of tickets so get yours soon!  Click the Wizard logo to the right to order tickets online. You can also pick up tickets at Montville Pharmacy – 185 Changebridge Rd. or Montville Recreation – 195 Changebridge Rd in Montville. You can also order tickets on line by going to our website at www.PathwaysKids.org
Our Video Crew Does it Again!
Pathways’ video crew has joined once again with Taisha’s Table to film her cooking show. If you did not get a chance to see this, you have take a look. This recipe will no doubt capture the heart of chocolate lovers everywhere! We tried this New Years Eve and could not stop eating it, the fondue was heavenly!

IEP HELP

IEP meeting
It’s IEP time! Where did I put those report cards? FAPE IDEA What was that teacher’s name? LRE Should we keep him in speech? IEE Don’t get caught in a rush, wondering what to discuss, not understanding a single word they say! Call: specialneedsheader.jpg Special Needs NJ…. NOW! 973-534-3402 Our experts can help you interpret those test sores, percentages, rankings etc… But more importantly; we know the law! If you’ve ever been afraid, intimidated, feel unsure, bullied, unheard, talked down to and think your child needs a better written, more individualized IEP? Don’t wait for the last-minute. This is your child’s education! Let’s get together, so this year you feel confident, prepared, educated, and not intimidated. Our advocates are ready and waiting to serve you and your child. Not only will we meet you and your child in the comfort of your own home, but we will accompany you to the meeting at your school. We want to help educate you about the education your child has a right to receive within your home community. Negotiate and work with school professionals to ensure your child gets the best possible education that will address his/her disability “needs.” And not simply pigeon-holed into a one size fits all model of what the school thinks is representative of a Free Appropriate Public Education (FAPE). Call NOW! 973-534-3402 for your FREE consult

The ABC’s of Special Education

Image

 Anatomy of a Special Needs Child

18.5% of American Children under 18 are special needs students.That doesn’t mean they aren’t smart, talented, or capable. Just that they have specific challenges that a “normal” student wouldn’t face.

There are four major types of special needs children.

1.)Physical– Muscular Dystrophy, Multiple Sclerosis, Chronic Asthma, Epilepsy, etc.
2.) Developmental–Down syndrome, autism, dyslexia, processing disorders.
3.)Behavioral/Emotional–ADD, Bipolarism, Oppositional Defiance Disorder
4.)sensory impaired–Blind, visually impaired, deaf, limited hearing.

Here’s our guide on how to identify and care for special needs children.

The basics

Is your child being treated humanely?               Know your rights:
The IDEA Act (Individuals with Disabilities Education Act):
–Students with disabilities must be prepared for further education, employment, and independent living.
–If a child’s strength, endurance, or stamina cannot keep up with school activities, they can qualify for “other health impaired” special education status.
Section 504 of the rehabilitation Act:
–Prohibits schools from discriminating against children with disabilities.
–Requires schools to provide accommodations for disabled students.
–Students with impairments that substantially limit a major life activity can qualify as disabled (learning and social development deficits too).
Americans with Disabilities Act (ADA):
–Schools must meet the needs of children with psychiatric problems.
No Child Left Behind
–Schools must uphold achievement standards for children with disabilities.

Core Concepts

IEP, (or Individualized Education Program) is a legally binding document spelling out what special education services your child will receive and why. Includes classification and accommodations.
Classification: One of 13 different disability classes that qualify for special education services. Including: visual impairment, speech and language impairment, auditory impairment. deaf/blind, Autism, developmental disabilities, multiple disabilities, orthopedic impairment, Specific learning disabilities, emotional/behavioral disorder, traumatic brain injury, multi-sensory impairment, and serious health impairment.
Accommodations: a change in timing, presentation, formatting, setting, etc… that will allow the student to complete normal classwork.
Modification: an adjustment to an assignment that a special needs child is not expected to complete at a normal level.

Types of Special Needs

Special Physical Needs

Whether you already know, or just believe your child may have special medical needs, finding the proper medical professionals greatly enhances your ability to take care of your children.

Choosing a doctor:
Location: if your child requires regular visits, you won’t want to drive for hours to specialist.
Demeanor: you want someone non-threatening (particularly to younger children) who is understanding towards special needs accommodations.
Insurance Help: Larger practices generally have more experience with expediting insurance procedures and being your advocate.
Availability: Something to balance with quality of service. You will probably need notes for teachers, school administrators, and others, and want to have an easily accessible doctor.
Quality of service: Perhaps the most important criterion. Set up a 10-15 minute “meeting” so you can gauge the Doctor’s knowledge about your child’s conditions.

Types of Special Physical Needs

Allergies and Asthma: 1/5
Juvenile Arthritis:1/1000
Leukemia: Very rare
Muscular Dystrophy: 1/35,000
Sight Impaired:
Multiple Sclerosis: 1/750
Hearing Impaired:

Tips for dealing with medical needs

1.) See if your child qualifies for “other health impaired” placement in special ed.
a.) Other health impaired (according to Federal Regulation) includes children who have “limited strength, vitality, or alertness, including to environmental stimuli.”

Allergies and Asthma– Are the same in children as in adults, only children have less maturity and emotional resources than adults to deal with them.

Tips:
1.) Explain to children what they are allergic to.
2.) Alert school personnel as to the conditions and provide medicines.
3.) Work with school personnel to make accommodations.
a.) Substitute another activity for recess on high pollen count days.
b.) Make sure that caretakers schedule symptom inducing activities around when a child will be in the area.
c.) Tailor coursework to provide emotional and explanatory support for the child’s condition.

Juvenile Arthritis

–Education is often interrupted during long “flare-ups” of juvenile arthritis. Here’s what you can do to promote healthy development.
1.) Establish an IEP or 504 plan with educators to ensure that your child’s rights are protected.
a.) The IDEA act (Individuals with Disabilities Education Act) outlines a special needs child’s rights in education.
2.) If the students strength, endurance, or stamina is affected obtain a note from a physician to see if your child qualifies for special education under “other health impaired.”
3.) Contact the hospital or homebound coordinator for your district if your child is frequently missing large periods of school.
4.) Frequent communication between parents and teacher ensures the teacher knows the student’s current medical status and can adapt lessons accordingly.
5.) Proper ergonomics in the classroom are particularly important for children with juvenile diabetes

Leukemia–The five-year survival rate for Leukemia is 60%-80%.

Over such a prolonged period key emotional and cognitive developmental stages may be reached.
Key factors:
1.) Limit pain
2.) Emotional support helps with development
3.) Mental engagement is important so that recovering children don’t fall massively behind.

Muscular Dystrophy

1.) Ensure your child is being worked with by an Assistive Technologist, Occupational Therapist, and school Psychologist.
2.) Make sure that teachers understand that fatigue, clumsy or slow movement, or slurred words are health issues, not behavioral issues.
3.) Remember your child is still a child with normal interests and dreams.

Sight impaired

1.) Seek out an assistive technologist if impairment persists after help from an eye doctor. It’s hard to learn if you can’t see!

Hearing impaired

1.) Seek out ENT’s and assistive technologists to help your child. It’s hard to learn if you can’t hear!

Special developmental needs

Many developmental delays can be spotted in a child’s first year of life. Children develop at different rates, but these are the rough ages a child should reach certain milestones.

Motor skills

3 months:
1.) Lift head and chest when on stomach
2.) Follow people and moving objects with eyes
3.) Grasp rattle when given to her.

6 months:
1.) Reach for and grasp for objects
2.) Roll over
3.) Sit with little support
12 months:
1.) Drink from cup with help
2.) Crawl
3.) Walk with help

Sensory and thinking skills

3 months:
1.) Recognize bottle or breast
2.) Turn head to bright colors or sound of human voice

6 months:
1.) Imitate familiar actions.
2.) Open mouth for spoon.

12 months:
1.) Try to accomplish simple goals.
2.) Copy sounds and actions you make.

Language and social skills

3 months:
1.) Communicate fear, hunger, or discomfort.
2.) Smile when smiled at.

6 months:
1.) Smile at self in mirror.
2.) Know familiar faces.
3.) Babble. Sing-song noises.

12 months:
1.) Try to “talk” with you.
2.) Understand simple commands.
3.) Show apprehension at strangers, affection to familiar adults.

Tips for dealing with Special Developmental Needs:

Autism: 1/110
Autism spectrum disorder ranges from mild lack of social understanding, to non-verbal

Early signs:
1.) Not responding to name by 12 months.
2.) Delayed speech and language skills.
3.) Avoiding eye contact.
4.) upset with small changes in routine.

Tips:
1.) Get an evaluation as early as possible.
2.) Utilize school psychologist, and occupational therapist.
3.) Create a “safe” zone where the child can be alone and relax at home.
4.) Pay attention to child’s hypersensitivity.

Dyslexia: 1/5
Dyslexia is very taxing, taking at least 5% more energy to process basic tasks. Those with dyslexia have much to offer, however, with dyslexia sufferers often being above average IQ and highly creative.

Early Signs:
1.) Appears bright, but unable to read at grade level.
2.) Tests well orally, but not on written tests.
3.) Seems to “daydream” a lot.

Tips:
1.) Read advanced material. This engages both sides of the brain.
2.) Don’t stress the misreading of “little” words (in, i’m, none, he). They will outgrow such mistakes.
3.) Discussion, discussion, discussion.

Many students with developmental delays are actually very gifted. Don’t stress the little mistakes, let them show you what they can do.

Special Behavioral/Emotional Needs

Students with behavioral/emotional needs are more than capable of learning, but their disabilities need management so they don’t distract themselves or the entire class.
–Obsessive Compulsive Disorder (OCD): 1/200
–Post Traumatic Stress Syndrome (PTSD): 1/20
–Anxiety Disorders:

Overall tips:
1.) Learn more about your students specific illness, what caused it, what type of therapy they’re attending, and so on.
2.) Learn about the student’s strengths. Pull these out. Positive reinforcement works.
3.) Set very clear behavioral rules on the entire class or family.

Support the inclusion of all types of children and celebrate their talents. Most of all, don’t forget they’re just kids.

Thank you to Masters in Special Education for this information:

Link to Masters in Education.com

Citations

– http://www.healthfinder.gov/HealthAtoZ/Letter/e

– http://specialchildren.about.com/od/medicalissues/tp/Medical-Diagnosis-Index-A-B.htm

– http://www.cincinnatichildrens.org/patients/child/special-needs/medical/disabilities/default/

– http://www.cancer.org/cancer/leukemiainchildren/detailedguide/childhood-leukemia-survival-rates

– http://www.ces.ncsu.edu/depts/fcs/pdfs/NC08.pdf

– http://www.aafa.org/display.cfm?id=9&sub=30

– http://www.kidsgetarthritistoo.org/about-ja/the-basics/genetic-arthritis.php

– http://www.shs.d211.org/science/faculty/bms/findocbio.pdf

– http://www.shs.d211.org/science/faculty/bms/findocbio.pdf

– http://www.disabilitysa.org/content-files/USAA%20Foundation%20-%20Children%20with%20Special%20Needs.pdf

– http://specialed.about.com/cs/idea/a/faq1.htm

– http://ms.about.com/od/multiplesclerosis101/p/ms_risk_factors.htm

– http://nichcy.org/disability/milestones

– http://www.p12.nysed.gov/specialed/autism/ASDbrochure.htm

– http://www.dosomething.org/tipsandtools/11-facts-about-dyslexia

– http://www.dyslexia.com/library/symptoms.htm

– http://www.ocfoundation.org/prevalence.aspx

– http://www.ptsd.va.gov/professional/pages/ptsd_in_children_and_adolescents_overview_for_professionals.asp

<!

 

Advocating for the Special Needs Child

Advocating For The Autistic Child
By Carly Fierro on November 27, 2012

Parents of autistic children must become advocates to ensure their children receive appropriate education and special needs services. A successful advocate researches her child’s legal rights, meets regularly with school staff, and documents all events related to her child’s education.

There is a fine line, however, between standing up for your child and his or her rights, and coming across rude and vicious. Unfortunately there will be times throughout your child’s life where he or she will be discriminated against. It’s not fair, but it happens and the best thing that you can do as a parent is represent your child in the best manner possible.

Know the Law

The federal Individuals with Disabilities Education Act (IDEA) makes sure all kids with disabilities have access to the right public education — for free — that can meet their unique needs by emphasizing special education.

IDEA is important for two reasons. First, your child has a legal right to “free appropriate public education.” Second, IDEA requires schools and Departments of Education to treat every special needs child as an individual and unique case, so services offered to one child may not be available to another.

Take the time to read IDEA, or at least a well-written summary, so you know what rights and services you can expect for your child. Check local and state laws governing special needs children as well. Some states offer services over and above those required by IDEA, while others provide the bare minimum.

The Importance of the IEP

Once a year, expect to meet with your child’s teachers, special needs providers, and school administration to review and modify your child’s Individual Education Plan (IEP), which covers all services and accommodations the child receives for that school year. Services not included in the IEP won’t necessarily be available.

Think of the IEP as a preemptive mosquito trap, where you catch problems before they occur. Listen carefully during the meeting, ask questions and make suggestions. Only remove services from the IEP if you’re certain your child no longer needs them.

Be proactive during IEP meetings. The school may not volunteer services unless you ask for them. Ask about issues such as classroom aides, summer sessions, speech therapy, and similar services.

Forge Alliances with Teachers

The IEP is an excellent time to meet and develop working relationships with your child’s teachers. Let them know that, as a parent of an autistic child, you understand the challenges that arise when teaching a special needs kid, and you appreciate their efforts. A little praise often goes a long way.

Offer to communicate regularly with teachers about classroom issues, either by phone or through email. Teachers usually appreciate parent involvement.

Get Everything in Writing

Follow an old lawyer’s creed: if it isn’t in writing, it never happened. Keep documentation of everything involving your child’s education, including copies of her IEP, specialist visits and education assessments.

Send a written request for any meetings or changes to services, and follow up all meetings with a polite letter. Your goal is to have a clear paper trail in case you need to prove or dispute issues.

Solutions Trump Blame

It’s all too easy to have an antagonistic attitude towards school officials if they seem unwilling to help your child. Accusations and heated words, while tempting, do nothing to help your child. Seek equitable solutions for both yourself and school staff whenever possible, and remain polite no matter what.

Occasionally you will run into a few adults who are not willing to help you or your child. Instead of getting angry, remember to keep your composure and hold your head up high. The last thing you want to do is set a bad example for your child. Take the high road and your child will learn to do the same.

 

 

CONTACT Special Needs NJ, LLP today for professional help in interpreting, planning, and advocating for your child’s IEP