IEP Coach/Advocacy

“Cc: 3 people on every email.”

This was one of the best pieces of advice Linda gave us and we hadn’t even signed a contract with her yet!

My son has been in the public school system since he was three years old. After being asked to leave multiple daycares, one owner suggested we contact our school district’s CST and have him tested. He was tested and was deemed eligible for their special needs pre-school program. He started with half-days and transitioned to full days.

As parents, we thought we were doing the best for him. We had our IEP meeting and everything was great. Boy do I wish I knew what was ahead of me!!!

Kindergarten started off okay, but then he was put on home instruction because he was a “public health” risk. I had hired a different advocate then, but she didn’t do a thing for me. I even contacted a special needs attorney who offered advice and we were able to get him back into school.

First grade, again started off okay, but then it went downhill. At one of the many meetings with the school, we raised the question of out of district placement. Oh no, we were told. Multiple times that year, while being summoned to the school to pick up our son due to his current behaviors, arriving and being shuttled into an impromptu meeting, we would say, perhaps out of district placement is the answer and we were told No, we have not done everything we can for him yet.

In the spring, I contacted Linda. Best thing we could have ever done. At our first meeting, she gave me so much information and I thought to myself, I had no idea that I was the person in control of my son’s IEP meetings. Linda took the time to review all of my son’s records and ask what we wanted for our son. Together, we devised a plan to fight for our child and the education he deserved. Linda is a bulldog. She knows how to ask the tough questions that parents don’t want to ask or know to ask. She is upfront and always responsive.

Months and months of meetings and emails and unfulfilled requests, we wound up in court. We had no choice. Days before my son was supposed to start his new school, I was still getting “bullied” by the school district and administrators.

My son has been in his new school since the end of November and he is doing outstanding. He was named “Student of the Month” this past month and received his first report card – all A’s and B’s. He has not been sent home once! When his teacher calls me for a weekly status update, she is nothing but positive. We could not be happier and more proud of our child. We credit a lot of people, but without Linda, our son would not be in the proper educational atmosphere, he would not be as successful as he is and I would not have my sanity.

Get yourselves educated. Know your child’s rights and your rights as parents. Understand that they are not in control of your child’s educational future, you are. Hire an advocate (IEP Coach/advocate Linda’s email specialneedsnj@hotmail.com and website www.specialneedsnewjersey.com) who understands the special educational system. School administrators take advantage of the that fact parents do not know all the ins and outs of how the system works and for many, including myself, there is so much more than just that little PRISE book they give you at the meeting.

Stand your ground. Ask questions. Ask for documentation and communication in written form. Control the conversation and the meetings. And most importantly, every communication should include at least people!!!!!

Nicole K.

Nicole is one of the parents I have served through IEP Coaching and Advocacy. You will be hearing more of her story in future posts.

If your child is struggling in Special Education, you need to learn the ins-and-outs of Special Education, have questions about what the PRISE booklet is all about, or have a newly diagnosed or classified child in your family…. Contact me at (973) 534-3402 or send an email to specialneedsnj@hotmail.com, or go to my website and fill in the contact/request form www.specialneedsnewjersey.com. NOTE: Don’t let the NJ part put you off, I serve ALL states! The laws of the IDEA are national! Some practices, policies, and timelines vary state to state, but YOUR RIGHTS and the rights of YOUR CHILD are the same across ALL borders! (NJ is simply where I am located and it was the best available domain when I started.)

I hope to hear from you soon to learn how I can help you help your child.

Coach Linda

HELP! I Need a Parenting Coach

Linda McDougall-Leenstra will come into your home by phone or video call and give you an action plan to bring the order and calm you desire. No matter how chaotic things feel right now, you will see improvement after the very first call. Whether you schedule one coaching call or multiple sessions, Linda can help you fix the most frustrating parenting struggles…:

  • Morning routines – Kids that drag their feet and struggle to get out the door on time.
  • Bedtime and Sleep issues – Is it a battle to get your child into bed and have them stay there all night long?
  • Back Talk – A common problem sweeping our nation, but you don’t have to tolerate it!
  • Not Listening – Are you constantly repeating and reminding?
  • Power Struggles – Why is everything a battle?
  • “Sibling Rivalry” – Are you a referee in your own home?
  • Entitlement Epidemic – Do your kids feel a sense of entitlement?
  • Tantrums – From toddler’s to teens…learn to tame the tantrums from an expert in behavior.
  • Whining – Wean them off the whining for good…and so much more.
  • Disability diagnosis’, IEP, and school issues – They don’t see in school what you see at home?
  • Linda is a trained Special Educator with years of experience working with behavior difficulties

“I saw improvements after my first session with Linda. It was great a breath of fresh air to know that I’m not doing everything wrong, that my son isn’t ‘bad’ and that it took just a few small changes I could make that would have such a huge impact.”

Linda is a knowledgeable and experienced parenting coach and teacher, and we gladly recommend her to all the parents we can!” – Karen Welcome

TAKE THE FIRST STEP

Complete the form above to receive information and get started on the path to a new life

Special Education Parent Advocate

Linda Leenstra, Special Education Parent Advocate

Linda wants you to ……

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Advocacy to parents understanding your child’s Individual Education Plan (IEP), which includes:  A. Interpretation, B.Preparation C. Monitoring and observation, D. Meeting attendance, E. Letter Writing, etc…

Contact Linda:

(973) 534-3402

A guide to Section 504

I found this wonderfully written article on the 504 plan by Mary Durheim

section 504
A parent’s guide to Section 504 in public schools
This important civil rights law can provide educational benefits to kids with learning disabilities and/or ADHD in public schools.
by: Mary Durheim | December 16, 2016

Section 504 — just what exactly is it? You’ve probably heard about it, but every school district addresses Section 504 in a different manner. Some districts have even been heard to say, “We don’t do that in this district.” But in fact, compliance to Section 504, which is a federal statute, is not optional. This article attempts to answer basic questions pertaining to the implementation of Section 504 in public school systems.

What is Section 504?

Section 504 is a part of the Rehabilitation Act of 1973 that prohibits discrimination based upon disability. Section 504 is an anti-discrimination, civil rights statute that requires the needs of students with disabilities to be met as adequately as the needs of the non-disabled are met.
Section 504 states that: “No otherwise qualified individual with a disability in the United States, as defined in section 706(8) of this title, shall, solely by reason of her or his disability, be excluded from the participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance…” [29 U.S.C. §794(a), 34 C.F.R. §104.4(a)].

Who is covered under Section 504?

To be covered under Section 504, a student must be “qualified ” (which roughly equates to being between 3 and 22 years of age, depending on the program, as well as state and federal law, and must have a disability) [34 C.F.R. §104.3(k)(2)].
Who is an “individual with a disability”?
As defined by federal law: “An individual with a disability means any person who: (i) has a mental or physical impairment that substantially limits one or more major life activity; (ii) has a record of such an impairment; or (iii) is regarded as having such an impairment” [34 C.F.R. §104.3(j)(1)].

What is an “impairment” as used under the Section 504 definition?
An impairment as used in Section 504 may include any disability, long-term illness, or various disorder that “substantially” reduces or lessens a student’s ability to access learning in the educational setting because of a learning-, behavior- or health-related condition. [“It should be emphasized that a physical or mental impairment does not constitute a disability for purposes of Section 504 unless its severity is such that it results in a substantial limitation of one or more major life activities” (Appendix A to Part 104, #3)].
Many students have conditions or disorders that are not readily apparent to others. They may include conditions such as specific learning disabilities, diabetes, epilepsy and allergies. Hidden disabilities such as low vision, poor hearing, heart disease or chronic illness may not be obvious, but if they substantially limit that child’s ability to receive an appropriate education as defined by Section 504, they may be considered to have an “impairment” under Section 504 standards. As a result, these students, regardless of their intelligence, will be unable to fully demonstrate their ability or attain educational benefits equal to that of non-disabled students (The Civil Rights of Students with Hidden Disabilities under Section 504 of the Rehabilitation Act of 1973—Pamphlet). The definition does not set forth a list of specific diseases, conditions or disorders that constitute impairments because of the difficulty of ensuring the comprehensiveness of any such list. While the definition of a disabled person also includes specific limitations on what persons are classified as disabled under the regulations, it also specifies that only physical and mental impairments are included, thus “environmental, cultural and economic disadvantage are not in themselves covered” (Appendix A to Part 104, #3).

What are “major life activities”?

Major life activities include, but are not limited to: self-care, manual tasks, walking, seeing, speaking, sitting, thinking, learning, breathing, concentrating, interacting with others and working. As of January 1, 2009 with the re-authorization of the Americans with Disabilities Amendment Act, this list has been expanded to also include the life activities of reading, concentrating, standing, lifting, bending, etc. This may include individuals with AD/HD, dyslexia, cancer, diabetes, severe allergies, chronic asthma, Tourette ’s syndrome, digestive disorders, cardiovascular disorders, depression, conduct disorder, oppositional defiant disorder, HIV/AIDS, behavior disorders and temporary disabilities (e.g., broken writing arm, broken leg, etc.). Conditions that are episodic or in remission are also now covered if they create a substantial limitation in one or more major life activity while they are active. Students who are currently using illegal drugs or alcohol are not covered or eligible under Section 504.

What does “substantially limits” mean?

Substantially limits is not defined in the federal regulations. However, in a letter from the Office for Civil Rights (OCR), they state, “this is a determination to be made by each local school district and depends on the nature and severity of the person’s disabling condition.” New guidance from the Americans with Disabilities Amendment Act states that Section 504 standards must conform with the ADAAA and is “intended to afford a broad scope of protection to eligible persons.” In considering substantial limitations, students must be measured against their same age, non-disabled peers in the general population and without benefit of medication or other mitigating measures such as learned behavioral or adaptive neurological modifications, assistive technology or accommodations.

504
Who can refer a child for consideration for evaluation under Section 504?

Anyone can refer a child for evaluation under Section 504. However, while anyone can make a referral, such as parents or a doctor, OCR has stated in a staff memorandum that “the school district must also have reason to believe that the child is in need of services under Section 504 due to a disability” (OCR Memorandum, April 29, 1993). Therefore, a school district does not have to refer or evaluate a child under Section 504 solely upon parental demand. The key to a referral is whether the school district staff suspects that the child is suffering from a mental or physical impairment that substantially limits a major life activity and is in need of either regular education with supplementary services or special education and related services [letter to Mentink, 19 IDELR 1127 (OCR) 1993]. If a parent requests a referral for evaluation, and the school district refuses, the school district must provide the parent with notice of their procedural rights under Section 504.
Who decides whether a student is qualified and eligible for services under Section 504?
According to the federal regulations: “…placement decisions are to be made by a group of persons who are knowledgeable about the child, the meaning of the evaluation data, placement options, least restrictive environment requirements, and comparable facilities” [34 C.F.R. §104.35(c)(3)].
Unlike Special Education, the federal regulations for Section 504 do not require or even mention that parents are to be a part of the decision-making committee. The decision to include parents in the decision-making committee is a determination that is made by each school district and should be spelled out in the district’s procedures for implementing Section 504. Parents should at least be asked and encouraged to contribute any information that they may have (e.g., doctor’s reports, outside testing reports, etc.) that would be helpful to the Section 504 committee in making their determination of what the child may need. Schools are expected to make sound educational decisions as to what the child needs in order to receive an appropriate education.

What information is used in doing an evaluation under Section 504?

Under Section 504, no formalized testing is required. The 504 Committee should look at grades over the past several years, teacher’s reports, information from parents or other agencies, state assessment scores or other school administered tests, observations, discipline reports, attendance records, health records and adaptive behavior information. Schools must consider a variety of sources. A single source of information (such as a doctor’s report) cannot be the only information considered. Schools must be able to assure that all information submitted is documented and considered.

Can my child be placed under Section 504 without my knowledge?

NO. Parents must always be given notice before their child is evaluated and/or placed under Section 504 (34 C.F.R. §104.36). Parents must also be given a copy of their child’s Section 504 accommodation plan if the committee determines that the child is eligible under Section 504.

What types of accommodations will my child receive if determined eligible under Section 504?

Each child’s needs are determined individually. Determination of what is appropriate for each child is based on the nature of the disabling condition and what that child needs in order to have an equal opportunity to compete when compared to the non-disabled. There is no guarantee of A’s or B’s or even that the student will not fail. Students are still expected to produce. The ultimate goal of education for all students, with or without disabilities, is to give students the knowledge and compensating skills they will need to be able to function in life after graduation.
Accommodations that may be used, but are not limited to, include:
• Highlighted textbooks
• Extended time on tests or assignments
• Peer assistance with note taking
• Frequent feedback
• Extra set of textbooks for home use
• Computer aided instruction
• Enlarged print
• Positive reinforcements
• Behavior intervention plans
• Rearranging class schedules
• Visual aids
• Preferred seating assignments
• Taping lectures
• Oral tests
• Individual contracts

Will my child still be in the regular classroom or will he be in a “special class”?

A Section 504 eligible child will always be in the regular classroom unless (according to federal regulations): “… the student with a disability is so disruptive in a regular classroom that the education of other students is significantly impaired, then the needs of the student with a disability cannot be met in that environment. Therefore, regular placement would not be appropriate to his or her needs and would not be required by §104.34” (34 C.F.R. §104.34, Appendix A, #24).

Can my child still be disciplined under Section 504?

Yes. Children under Section 504 are still expected to follow the district’s student code of conduct. However, when disciplining a child under Section 504, schools must consider the relationship between the disability and the misbehavior if the child is going to be removed from the regular setting for longer than 10 days. This does not mean that a student with a disability cannot be sent to a discipline center or that they cannot go to in-school suspension, or be suspended from school for three days. Very strict guidelines exist for schools in discipline issues with students who have a disability under Section 504. Your campus or district 504 coordinator can assist you in this area should you have additional questions concerning the discipline of students with disabilities. Children having disabilities with behavioral components should have individual discipline plans as well as behavior intervention plans.

If I disagree with the school’s evaluation, will the school district pay for an outside independent evaluation?

Under Section 504, schools are not required to pay for an outside independent evaluation. If a parent disagrees with the school’s evaluation decision, they may request a due process hearing or file a complaint with the Office for Civil Rights. (Ask your district or campus for a copy of Notice of Parent and Student Rights Under Section 504 of the Rehabilitation Act of 1973.)

504 vs IEP
How often will my child be re-evaluated?

While there are no specific time lines on this issue, students must be re-evaluated at least every three years or whenever there is going to be a “significant change in placement.” The campus 504 committee should re-evaluate your child’s plan every year to make sure that his or her accommodation plan is appropriate based on their current schedule and individual needs. The accommodation plan may be revised at any time during the school year if needed.

Will my child still be able to participate in nonacademic services?

Yes. Districts must provide equal opportunity in areas such as counseling, physical education and/or athletics, transportation, health services, recreational activities, and special interest groups or clubs. However, the “no pass, no play ” standard used for students in most states also applies to students under Section 504 (34 C.F.R. §104.37).

What are my rights as a parent under Section 504?

As a parent or legal guardian, you have the right to:
1. Receive notice regarding the identification, evaluation and/or placement of your child;
2. Examine relevant records pertaining to your child;
3. Request an impartial hearing with respect to the district’s actions regarding the identification evaluation, or placement of your child, with an opportunity for the parent/guardian to participate in the hearing, to have representation by an attorney, and have a review procedure;
4. File a complaint with your school District Section 504 Coordinator, who will investigate the allegations regarding Section 504 matters other than your child’s identification, evaluation and placement.
5. File a complaint with the appropriate regional Office for Civil Rights. For additional information, contact: U.S. Department of Education, Washington, D.C. 20202-1100
(800) 421-3481
http://www.ed.gov/ocr
E-mail: ocr@ed.gov

Do I contact the State Education Agency (SEA) if I have a complaint concerning Section 504?

No. The State Education Agency has no direct jurisdiction over Section 504 implementation. Complaints may be addressed to your local District 504 Coordinator or to the Office for Civil Rights.

 

 

 

If you feel you may need an advocate for your child’s educational services; contact Linda at 973-534-3402

 

 

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One note of caution: Please do not substitute this information for independent and individual legal advice. Such advice should be sought from a licensed, qualified attorney in the field of Section 504 disabilities. Every situation is different, and a good assessment of the risks involved in your particular situation can only be determined by consulting with your attorney and providing him or her with all of the relevant factual data. Sometimes just one “minor” detail can make a material difference in the outcome of a case.

Time to Evaluate?

 

Independent Educational Evaluations IEE

IEE

Pursuant to the Individuals with Disabilities Education Act, a parent of a child with a disability who disagrees with the school district’s evaluation of the child is entitled to request the performance of an independent education evaluation (“IEE”) of the child at public expense.  (Notably, an evaluation may consist of multiple “assessments.”)  You may request assessments not performed by the district (i.e., if you disagree that the district performed the appropriate assessments in the first place), and the district cannot then go back and do their own assessment before responding to your request.  Once you submit your request, the district has twenty (20) days to respond.  Its only proper responses are either(i) to agree to perform the IEE (which must be without unreasonable conditions), or (ii) to initiate a due process hearing in the Office of Administrative Law, at which the district would have to prove that its initial assessments were appropriate.

iee (1)

Offering a helping hand to ‘special needs’ families

Special Needs NJ Family Services serves locals in Sussex County

Sussex County NJ Parent Advocate: Linda Leenstra

BY CLAUDIA CARAMIELLO PUBLISHED DEC 10, 2013 AT 6:18 PM (UPDATED Feb. 2017) ShareThis ANDOVER —

“Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.” This famous quote from “The Lorax” appears on the cover of a pamphlet for Special Needs NJ Family Services LLP in Andover. It serves as an important message and theme of the children’s advocacy agency, who believe that all children have the potential to succeed academically regardless of any “special needs.”

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Be the change you want to see…Gandhi

Offering a helping hand For a parent, having a child who has been classified in school is usually an emotional experience fraught with confusion, questions and anxiety. The question, “What do we do next?” is raised, and parents can feel overwhelmed with paperwork, Individual Education Plans (IEP) interpretation, and meetings with Child Study Teams.

Helping a child to stay motivated, reach their potential, and like school can be a daunting task for mothers and fathers. Serving families throughout NJ but anchored in Sussex County, Special Needs NJ provides individual services to families who have a child in the school system with special needs. These services include Advocacy for the child, tutoring, life skills, ABA therapy, and now adding Life Coaching for parents and aging students.

The goal of Special Needs NJ, is to help parents navigate the sometimes confusing world of having a classified child, as well as making children aware that they have someone on their side.

“If you went to work everyday and were compared to the guy in the next cubicle, you would start to hate going to work,” says Special Educator, advocate, therapist, and life coach, Linda Leenstra, known warmly to her students as “Ms. Linda.”

“Everybody needs to understand that we are not all square pegs that fit neatly into the square hole. The American education system is so stuck on this concept that children begin to feel like there is something wrong with them; they don’t fit into the system,” says Leenstra. “Here at Special Needs NJ, we feel that individualism is a great thing!”

Classification:  In New Jersey, there are 14 different types of classifications within the education system. For parents, making sense of the terminology, and navigating a path toward well being for their child can be intimidating. Leenstra provides the important service of going into the schools with the parents and attending IEP meetings with the Child Study Team. She often encourages parents to bring a picture of their child to the meeting which helps keep the focus on why everyone is there. They are there for the child. “It is important for school systems to know that we are not working against them, but with them,” says Leenstra. “The best thing for a child is an educated parent, and our main drive is to educate parents on how to get their child in the right program.”

In an effort to help a child reach their potential, Special Needs NJ also will go into homes and provide, not only tutoring, and help with a specific subject, but life skills for children who have a learning disabilities, and behavioral training for both parent and child. Special Needs NJ can help train parents on how to deal with struggles their child may be going through, and provide encouragement to the child. The agency will also assist parents in organizing and understanding the paperwork and forms that comes with having a child who is classified.

Anniversary: as Special Needs NJ is entering it’s fifth year, they continue to grow and provide help to families in New Jersey. The agency also works on a sliding scale fee, and are individualized to a client’s needs. Leenstra regards her role as advocate and educator as more then a job, and establishes a strong connection to the families she works with.

“If you think about it, kids are always under scrutiny, always judged,” says Leenstra. “They are naturally free spirits who want to learn, explore, touch everything, but then they go to school and have their art work compared to other kids.” “For every negative statement made, we should always make five positive ones,” Leenstra advises. “People want to be complemented, not compared.”

For more information visit http://www.specialneedsnewjersey.com or call 973-5343402

Special Needs NJ provides a free consultation to discuss how their specialized services fit your individual needs.

Pictured: Linda Leenstra, Court Appointed Special Advocate, with Judge of Morris and Sussex County Courts NJcasa